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What’s in Life’s Good book?

Dedication

Life’s Good is an inspirational true story about love and living well with a terminal disease.

This book is dedicated to my husband, Alan Carter. The finest man I have ever known.

It is also dedicated to the invisible heroes – family members and friends, who selflessly give of themselves every day, caring for a loved one they cannot save.    Hazel x.

The Book
The Book

Contents

Foreword by Professor Dame Pamela Shaw
The last room
Part 1 – Alan and Hazel
Part 2 – Diagnosis
Part 3 – Disease progression
Part 4 – Disease takes hold
Part 5 – End of life
Part 6 – Life without Alan
Family members mentioned in this book
What family and friends say about Alan
What’s available on lifesgoodbook.co.uk
Acknowledgements
MND and information about the charities who will receive proceeds from this book
• 12 Facts about MND
• MND Association
• Marie Curie
• The Myton Hospices
About the author

Dedication

Life’s Good is an inspirational true story about love and living well with a terminal disease.
This book is dedicated to my husband, Alan Carter.
The finest man I have ever known.
It is also dedicated to the invisible heroes – family members and friends, who selflessly give of themselves every day, caring for a loved one they cannot save.
Hazel
The Book
Contents

Foreword by Professor Dame Pamela Shaw
The last room
Part 1 – Alan and Hazel
Part 2 – Diagnosis
Part 3 – Disease progression
Part 4 – Disease takes hold
Part 5 – End of life
Part 6 – Life without Alan
Family members mentioned in this book
What family and friends say about Alan
What’s available on lifesgoodbook.co.uk
Acknowledgements
MND and information about the charities who will receive proceeds from this book
• 12 Facts about MND
• MND Association
• Marie Curie
• The Myton Hospices
About the author

The Book
The Book
The Book
Writing the book

This book has been produced using extracts from the journals and notes I kept every day during Alan’s illness. I am not a professional writer. This is my first, and probably only, book.

I have tried to recall everything accurately, but due to the emotion at the time, my perspective and clarity of certain events may not be exactly as others experienced them.

Also included in this book are:
• unedited extracts from the audio biography Alan made in the months before he died
• poems which randomly formed in my head during Alan’s illness, and
• practical tips and guidance based on my experience, and the benefit of hindsight.
I hope it will provide inspiration and ideas that are useful to you,
Hazel

Three groups of people will benefit from reading the book:

Friends and family members who are caring for a loved one with a terminal illness, especially MND.

Medical professionals, and healthcare workers, because it provides a far wider perspective than they can gain during their brief interactions with people affected by neurological, degenerative diseases. This book should be read by, GPs, neurologists, physiotherapists, occupational therapists, respiratory nurses, hospice staff, dieticians, speech and language therapists, social workers, communications technicians, wheelchair technicians, alternative/complementary therapists, psychologists, and those in adult care services.

MPs and decision makers who, hopefully, by reading this book, will be better informed when they are called upon to make decisions that affect families living with MND and other neurological degenerative conditions.

Writing the book

This book has been produced using extracts from the journals and notes I kept every day during Alan’s illness. I am not a professional writer. This is my first, and probably only, book.

I have tried to recall everything accurately, but due to the emotion at the time, my perspective and clarity of certain events may not be exactly as others experienced them.

Also included in this book are:
• unedited extracts from the audio biography Alan made in the months before he died
• poems which randomly formed in my head during Alan’s illness, and
• practical tips and guidance based on my experience, and the benefit of hindsight.
I hope it will provide inspiration and ideas that are useful to you,
Hazel

Three groups of people will benefit from reading the book:

Friends and family members who are caring for a loved one with a terminal illness, especially MND.

Medical professionals, and healthcare workers, because it provides a far wider perspective than they can gain during their brief interactions with people affected by neurological, degenerative diseases. This book should be read by, GPs, neurologists, physiotherapists, occupational therapists, respiratory nurses, hospice staff, dieticians, speech and language therapists, social workers, communications technicians, wheelchair technicians, alternative/complementary therapists, psychologists, and those in adult care services.

MPs and decision makers who, hopefully, by reading this book, will be better informed when they are called upon to make decisions that affect families living with MND and other neurological degenerative conditions.

The Book
The Book
The Book
The Book
The Book

Read an Extract
from Life’s Good

Read the Foreword
by Professor Pamela Shaw