For more information about MND or the organisations/quotations mentioned in this book, take a look at these sites.
Motor Neurone Disease Information
mndassociation.org/media/videos – including video’s regarding carers wellbeing
en.wikipedia.org/wiki/Motor_Neurone_Disease_Association
https://www.mndscotland.org.uk/
nice.org.uk/guidance/NG42/chapter/Recommendations#managing-symptoms
MND Association Care centres and Networks PDF
List of well know people who have died from MND/ALS
ranker.com/list/famous-people-who-died-of-motor-neuron-disease/reference (up to September 2019)
There are various MND Groups on Facebook.
Some may ask you to join the group to view the content.
MND (Motor Neurone Disease) Support and Information Group
facebook.com/groups/233314290163041
MND Here for Carers
facebook.com/groups/mndcollective
Life with MND
https://www.facebook.com/groups/lifewithmnd
Local MND Nurses or a local MND Association Visitor can signpost people living with MND to specific sites matching their needs.
Hospices and other charities
Book: With the End in Mind
wob.com/en-gb/books/kathryn-mannix/with-the-end-in-mind/9780008210915
Communication tools and mobility
thinksmartbox.com/product/grid-pad
10.1 Inch LCD Handwriting Board on Amazon
MND Association 7C Speech and communication support PDF
brotherwood.com/wheelchair-accessible-vehicles
geniestandingwheelchair.co.uk (Not mentioned in book)
Eating and drinking
hydrateforhealth.co.uk/our-products/the-hydrant
youtube.com/watch?v=bKEgSlszEx0 MND Guide to PEG Feeding
ouh.nhs.uk/services/departments/neurosciences/neurology/mnd/support/peg-rig.aspx
performancehealth.co.uk – Foam handled cutlery
Relaxing and having some fun
youtube.com/watch?v=OfZxM6jTr9s – The Hand Massage ‘M’ technique
